Testimonial by Joann Wurzbacher
I don’t know what I would have done had it not been for my Hospice team. My 76 year old husband has been slowly losing the battle against Multiple Systems Atrophy, a genetic disease which breaks down the connection between brain and nerves. It is in the Parkinsonian family with some similar symptoms as ALS. Once diagnosed as incurable, my husband informed me of his wishes to be able to live out his remaining years at home. This meant that I would have to retire early from my job in order to be his sole caregiver. Our children are married and moved to other states, and I have no other relatives, nor does he.
Then one day, I noticed a sign for Hospice Care of South Carolina. I called and was immediately relieved to hear that they would be able to assist me. Within a few days, they came to our home to evaluate my husband’s condition, and we were assured that he would meet the criteria for Hospice care as he had already requested in writing a DNR and did not want any life sustaining equipment or measures to sustain his life.
He is seen twice a week, always by the same team (Tiffany Tyner and Rachel Stacey) both times he has head to toe hygiene, all stats documented, and any other required record keeping as his condition continued to deteriorate. He is seen by a head nurse for a face-to-face visit once every couple of weeks. He and I have received counseling from a wonderful Social Worker (Diane) and has visits from the Hospice pastor (Dan). All are acutely aware of his condition and their compassion is unbelievable.
He has received medical supplies, hospital bed, transport chair, and incontinence products. When he has a problem or question, they are only a phone call away.
If you or a loved one are facing end of life issues, I can’t begin to tell you how I recommend you make that phone call. The burden of feeling all alone in this agonizing time is tremendously lightened. And the patient is secure that he or she will be able to pass with honor and dignity. What a blessing.